Disability Movement

I’ve lived in the same co-op apartment building since the spring of 2010. There have been times over the years when I’ve been frustrated with where I live, but nothing quite like this past week.

I live in a co-op in Ward 6 in Toronto. I’m fortunate to live in a wheelchair accessible apartment that I can afford, although I think the idea that someone should feel fortunate to live in a space that they can afford and access contributes to the kind of complacency leading to the situation that I’m now in.

As I write this, both elevators in my building are down for the third time this week. I live on the eleventh floor, and I have no idea when they’ll be up and running again. To clarify that, one elevator has been down for the entire week, and within this week the other elevator has broken down three times.

The first time was Tuesday, November 22nd, at around 10:30pm. I had just come into the building after visiting my friend in hospital on the other side of the city, so it was already a long day. I was just about to enter the elevator when the fire alarm went off. I waited downstairs for the fire department, and the fire situation was quickly resolved, someone was smoking in the stairwell. That should’ve been the end of it, but it wasn’t.

The firemen couldn’t get the elevator to go back in service. They couldn’t even get inside. They tried everything they could think of to get the elevator running again, even setting the alarm off to try to get it to reset, but it wouldn’t.

At this point I should explain that the building has some security, but they check on a range of building in the area. There is paid maintenance during the weekday, and the rest of the time we rely on volunteer maintenance. It’s well known in my building that the volunteer rarely answers his phone, and you have better luck banging on his door, but he was on vacation. My building manager was also on vacation.

There are a lot of seniors, and people with disabilities living in my building, thankfully I was the only one stuck downstairs. Security contacted my building manager, who contacted the daytime maintenance and the elevator repair company. It was about 11:30-12am when the maintenance guy came, he was not able to fix the elevator. He and security stayed with me until 1 am when my partner could get there. My partner and I decided to leave for an accessible hotel, the closest an hour away. My power chair was nearly dead, my cell phone was dead, and I had just the clothes on my back and my purse.

At 2 am, the fire department, thankfully nearby, saw us waiting for the night bus, and told us elevator repair company had shown up, and we went home. They knew because one of my neighbours got fed up and called 911. My local fire department is actually pretty great.

Since then, it was down Friday November 25th from before 6:30am to 10:30am, and again today, which is Sunday November 27th, I do not expect the elevator to work until Monday. I only found out about this because the person who came to assist me in the morning climbed 11 flights of stairs to get to me.

For me, I work full-time, and this impact my job and well-being. I’m trapped in my own home today, but it’s also a major safety concern for the seniors and people with disabilities that live here. What if an ambulance was called?

I recognize that sometimes things happen, but what really is most upsetting is the lack of preventative measures or concern.

When I called the building office on Friday, they acknowledged the problem, but offered no solutions or preventative measures. She offered to call me when the elevators were up, but I was already downstairs by the time she thought to call.

At the very least, we need full-time maintenance staff, and someone to check on vulnerable people when the elevators are down for more than an hour. Co-op members should be informed of expected repair times, and be given the option to switch companies if that’s what’s needed. This cannot be allowed to continue.

I’m writing to my Councillor Mark Grimes and my building manager Gary McMayo. I welcome other suggestions.

Starting at Queens Park (111 Wellesley Street West) and marching to the School of Disability Studies at Ryerson (99 Gerrard Street East) from 1:00 PM to 4:00 PM

Please note: accessible washrooms are not available at Queen’s Park. Please see information on accessible washrooms on the route page.

Why we’re Marching:

  • To bring recognition of the struggles and value of people with disabilities as we fight against ableism and other forms of oppression.
  • To be visible and show that we have a voice in our community and a right to be heard by taking to the streets.
  • To celebrate and take pride in ourselves as a community of people with disabilities.

Be Loud, Be Proud, Come March with Us!

Find us on Facebook and Twitter @DisabilityPM

We need volunteers and marshals for the march! If you have experience that is great, if not we still want you! If you aren’t sure what a marshal does, here’s a brief description. Please fill out the volunteer form if you are interested.

Some  things you should know if you plan to attend.

The Toronto Disability Pride March aims to promote a cross-disability atmosphere, that also recognizes other forms of oppression such as race, class, gender, sexuality, sanism, etc.  We believe the disability movement is strongest in a harmony of voices, not one homogeneous voice. We ask all those who plan to attend the march to respect this approach and the other people within the space of the march.

Have Questions? email us at torontodisabilitypride@gmail.com.

Wednesday, August 31, 2016 at 4:00pm
Please join us at Yonge and Bloor Station, Toronto, Ontario


D!ONNE Renée is the organizer behind this event. If you have any questions, want to throw your virtual support behind her, or have comments, reach out to her via email or on Twitter at @OnElectionDay.

Click to listen to audio announcement.

The announcement reads:

Accessibility is a Right — Not an Option

On Wednesday, August 31, 2016 – Between 4pm – 8pm, on behalf of community and Public interests, an #AccessibilityNow! TTC campaign/protest will take place starting in the Yonge and Bloor area to raise issues concerning discrimination based on disability, barriers, and ableism in transit and its services.

The Accessibility for Ontarians with Disabilities Act sets out the interpretation for “barriers.” Too many barriers exist within the TTC. It is not acceptable to take a “minimum/at least” approach in improving access for all. The standard should be a model that reflects an equal to or greater than the access that is currently available, model. The equal to or greater than the access that is currently available model is a model of equity and equality.

People have a right to access public systems; in this right, people should feel that they have the option to be free to choose whether they access those systems or not. We are all not free just to be.

Approximately 35 out of 65 subway stations are “partially accessible,” on good days. Functioning equipment = good days. “Partially accessible” means that all patrons don’t have the option to access the system for lack of elevators, Braille information and helps, proper signage (large print, clear, large-enough digital boards), functional escalators, inaccessible entrances/exits (now including Presto Card gates and readers) to subway stations, buses, streetcars, and extraordinary Wheel Trans wait/scheduling. Plus the TTC worsened accessibility when they began replacing the names of Toronto’s subway lines with confusing numbers.

TTC (and transit across Ontario and Canada) must be proactive in its operations and provide equality in its services and not discriminate against anyone, including people with disabilities and/or people requiring accessible access in order to use its systems. TTC was able to find money to implement Presto Card systems into its subway, bus, and streetcar services even though the gate systems being used at subway and bus stations are all not accessible; but TTC seems to be unable to be actively proactive in ensuring that all areas of TTC are fully accessible.

While this event will take place in downtown Toronto, the issues and concerns being raised affect all of Ontario and Canada. We want everyone to have the ability to travel independently, or in group, as we so choose.

We want a barrier-free Canada.

Will you help?

Will you join the protest and invite others to do so too? Will you gather with community in accessibility advocacy? #AccessibilityNow #GetItRight #AODA #AODAFail

Disability advocate Tim Rose is attempting to fly to Cleveland to deliver a presentation on the importance of accessibility. But, ironically, he can’t get there because a major airline is refusing to accommodate – or even brainstorm possible ways to meet – his needs. Although Air Canada is the only airline to fly there direct (and thus Tim’s only reasonable option), they are refusing to transport his wheelchair because it is too difficult for them. Despite the fact that he has flown this exact route with Air Canada on a similar plane before (not to mention flown many times around the world). Despite the fact that their own accessibility policy commits to transporting mobility aids that do not fit on smaller planes by another method. and despite the fact that they have almost two months to come up with a solution. They are saying Tim wanting to fly with his wheelchair is the same thing as trying to bring an oversized bag. Tim and his wheelchair are not baggage.

This is hardly the first time people with disabilities have received inequitable treatment by Air Canada, see this article from 2009, and this article from 2015 for just a couple examples.

A while back I also started a petition related to this issue.

See Tim’s video below. Apologies this video is not yet captioned. I will post a captioned video when it becomes available.

 

 

My proposed line-up of disability-themed movies:

  • A group of crip sisters sharing stories of their struggles through the years, and how their crip sisterhood helped them through it.
  • Maybe those crip sisters are on a spaceship, as part of a rebellion.
  • Two young disabled people from divided houses fall in love. In an act of rebellion against family pressure, they don’t kill themselves, but instead start a family of their own.
  • A disability activist searches for meaning in their own life while fighting for safeguards in assisted suicide laws.
  • A group of disabled/Mad friends go to Las Vegas for a bachelor party. They wake up the next morning to discover one of their friends is missing, and encounter various shenanigans while looking for them.

Ok so maybe I should stick with writing blogs, but I still think these films would be better than what’s on the table.  See this review of Me Before You if you’re not sure what I’m referring to here.

We know why ableist films and messages continue to spread, as do sexism, racism, and homophobia.

We have a responsibility to call out these stories, so that their toxic messages do not spread.

I’ve been seeing posts and messages that “it’s just one story” or “they don’t mean you”, but I think those posts miss the point.

I grew up in an area without many other disabled people. I had no disabled role models until I left home. Despite the privileges of being a white, middle class kid, I grew up with a lot of discrimination, but I didn’t know that’s what it was. I thought it was me, that I was broken. I was surrounded by sometimes well-meaning able-bodied people who saw my disabledness as something to mourn, or to mould into something more acceptable. They didn’t have better stories either.

Ableist stories were all I had until my twenties. Yes, I’m still here, but they’re woven into my formation, that’s just how it is.

Growing up in that environment still impacts me, some days I still feel broken. Some days ableist attitudes from others convince me for a time that I don’t belong, that I am less of a person.

I am fortunate now, that I have a strong community of disabled folks around me, but not everyone does.

Ableist stories and messages might not impact all of us equally, but they do cause harm.

We need to tell our own stories. We need less suicide and more solidarity.

Preferably with rebel forces on space cruisers.

Saturday, April 23rd 2016 | 4:15 p.m.

Multifaith Centre | 569 Spadina Ave (north of College)

Speakers
Melissa Graham  Fighter for social justice, public speaker, writer, researcher, and proud disabled woman working with youth, women, & other disabled people in Toronto. One of the organizers and founder of the Toronto Disability Pride March. 
Maureen Aslin , Facilitator and educator working with community groups to support end of life planning. Advocate for patient rights.

Speakers list is now online at:
http://marxismconference.ca/speakers

For full program details click here:
http://marxismconference.ca/program

To register online click here:
http://marxismconference.ca/register

part of MARXISM 2016 | ideas for real change
$10 or pwyc
info: marxismconference.ca

Originally posted at Socialist.ca

Note: Since this article was originally posted April 13th, the text of Bill C-14 has since been released. It is still in it’s preliminary form, and will likely change before it becomes law.

The right to choose when and how we die, on its surface, may seem like something the government has no business deciding. Perhaps that’s why the Supreme Court of Canada struck down the law prohibiting physician-assisted death in 2015. Effective June 6, physician-assisted death will be a funded part of Medicare across Canada. The federal government has until that date to decide just what should be funded, and under what circumstances.

The choice to live or die may seem liberating to some, but that choice is also somewhat of an illusion—layered with the familiar trappings of capitalism and oppression. In a country where poverty, gender roles, austerity and discrimination are a daily aspect of people’s lives, a state-approved right to die may sound more like a quiet suggestion than a mere option.

As the Council of Canadians with Disabilities (CCD) state in the opening paragraph in their Submission to Special Joint Committee on Physician Assisted Dying, “the Supreme Court of Canada in Carter emphasized that there needs to be a balanced system that both enables access by patients to physician-assisted suicide and voluntary euthanasia (PAD/VE), and protects persons who are vulnerable and may be induced to commit suicide.” The CCD Submission also stated risk factors for suicide included socio-economic factors, race, ethnicity, and culture, or onset of physical disability.

As Toronto Star reporter Thomas Walkom wrote in a recent article, “All of this might make eminent sense in a world where everyone (including every teenager) was rational, where physicians were all-seeing, where family members always had one another’s interests at heart and where the old, sick and disabled were not viewed as social burdens.”

Truthfully, assisted deaths have been a quiet occurrence in this country for a long time, but now that such deaths are permitted by the state, it’s necessary to consider the role government has in these decisions.

Quebec has consulted with the public since the Carter case began, and has since come out with Bill 52—which is quite narrow in scope. The Ontario government so far has made a number of recommendations without appearing to consider the research. The federal government however, is making some interesting decisions. First, it took power away from the existing federal committee to make any recommendations, then appointed its own committee made up of MPs and Senators. According to a recent article by the Globe and Mail “The majority of the parliamentary committee seeks to expand the criteria for physician-assisted death way beyond what was required by Carter or Bill 52. It includes mental-health conditions and all other disabilities, including developmental disabilities, autism, acquired brain injuries, fetal alcohol syndrome, not to mention blindness and deafness.”

So how do we as activists fit in to these unfolding events? While respect for the personal choice of individuals is important, it is equally important to consider the context of those decisions, and for whom laws get made. As the federal government and mainstream movements continue to waffle on the subject of oppression, it is up to us to continue to highlight oppression and discrimination to the forefront. The right to die can never be equitable without the right to live with dignity.

If you’d like to hear more on this topic, please join us for the Disability Rights and Physician Assisted Suicide Panel on Saturday April 23rd as part of Ideas for Real Change: Marxism 2016.

Note: There is a call for a Vulnerable Persons Standard. It addresses some of this issues, but without the context of ableism and other forms of oppression. The writers of this standard are currently looking for signatures.